Once upon a time last year, we sat in our living room with the third denial letter from the insurance company in our hands and wondered what to do. They had once again approved the frame of Ella’s wheelchair but not the wheels.
That was when I did what writers everywhere do, I poured out those feelings of angst and frustration into the written word, then the blogger in me hit “Publish.” It went viral, and several thousand tweets and retweets later, Jackie from BCBS was on the phone with me approving everything we’d requested. Even the things insurance didn’t usually cover were somehow approved by the magic pen Jackie wielded.
The story of what it took to get Ella’s wheels is in The Atlantic today, and it has me thinking back to the tears and angst of that time, and the trials we see other families go through in their quest to get appropriate care and equipment for their children. The implementation of the Affordable Care Act, also known as Obamacare, seems to have made what was already hard even more difficult.
The Disability Community is a very small percentage of the population, which makes our voices easy to ignore, but with most people needing this type of equipment and care at some point in our lives, it’s not a problem anyone can afford to ignore.
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